Leading the way, thoughts about sisterhood and Down syndrome

lead the way

(I’m on vacation this week … So here’s a post from the archives. Enjoy!)

Leading the way, thoughts about sisterhood and Down syndrome

When Polly was born and we learned of her diagnosis of Down syndrome, I grieved the child I expected. I didn’t know much about Down syndrome. My mind quickly flipped to un-flattering images of a child sitting alone at recess, or a mother in her golden years walking slowly through the aisles of Wal-Mart so that her adult daughter, still a child, could keep up. Sadly, it took me a while to let my guard down and fall in love with Polly.

Polly’s older sisters led the way. From the moment they met her, they dripped with love for her. They loved everything about her: “Oh, look at her pudgy little hands! Look at her wispy brown hair. Isn’t she just the cutest little thing ever?” When we later explained to them that Polly had Down syndrome, and that she would need a little extra help doing things, they didn’t bat an eye. “I guess it’s good that God gave her older sisters, huh, mom?” Elaina said.

Indeed.

Three years ago, when Evangeline joined our family, Elaina and Zoya took the lead once again.

Elaina stayed with me for seven weeks in Ukraine until the adoption was finalized. She spent long, Kiev days tickling Evie and helping me take her outside for walks as we waited for the paperwork for the adoption to go through. Once again, I struggled, and my kids led the way.

Snapshot from today:

A toy came home in Polly’s backpack today from Kindergarten. It’s one of those birthday favors. You blow on it and it flings out in front of you. What fun! Polly figured it out right away, and I was thrilled that it wasn’t the one with sound.

A little while later while I was finishing up an email on the computer, I saw Polly bring her new toy into the kitchen. Evie was sitting up on top of the table (one of her new favorite perches in the house), kicking her feet off the edge.

“Look, Evie,” Polly said, moving carefully, climbing up on the bench and then sitting down next to her on the table. “Look, Evie, it blows out,” she said, and then promptly gave a demonstration. I fought the urge to intervene. Evangeline is easily spooked and she is not Polly’s biggest fan. Most people love a happy, in your face five-year-old but Evangeline could do without. But I took a breath and waited to see what happened.

“You see that, Evie. It’s red. It’s pretty. It’s fun.” Polly blew on her toy again. “You like that, Evie. Do you?”

And the most amazing thing happened. Instead of reaching out and grabbing the toy. Instead of crying. Instead of getting the heck out of dodge (read: getting down off the table and away from Polly a.s.a.p.) Evie laughed.

She laughed.

Polly blew her toy again. Evie kept laughing. And for about five minutes they seemed like they were, I don’t know what’s the word?, playing together.

It was magical.

When Polly was born, I worried that she would feel alone but I learned quickly that her sisters would never let that happen. When Evangeline joined our family, I worried, I still worry, that we won’t be able to reach her. Some days she is very far into her own world. And then today, Polly initiated a game with Evie and Evie, just a little, for a few moments, let her in. Polly had Elaina and Zoya to prod her along in her development, and now she is starting to lead the way for Evie.

The magic is now gone. Polly broke her toy because she kept twisting the blow out part. Evie stole all of Polly’s pretzels out of her favorite ice-cream bowl. Polly is running circles around the house yelling, “hey, Evie, leave my snack alone” and Evangeline has climbed off the table. As I type she is eating pretzel bits off my, um, super clean kitchen floor.

But I don’t care. I’ll take the five magical moments when I saw Polly work her sister mojo on Evie.

Sisters are the best therapists in the world.

Down syndrome, adoption, bonding, hot cement, and hearing each other’s voice

 

How is your bond with Evangeline?

“How is your emotional connection to Evie going?” Nicola asked last week after I opened the blog for questions.

Thank you for asking about our bond, Nicola. I am a writer, so of course, as I thought about how to answer your question, a story emerged. Enjoy!

***

This afternoon the kids and I went outside to play. Our new dog Scout got to come out and bask in the sunshine too once I figured out how to screw her leash anchor into a small patch of malleable earth next to our house (the rest of our ‘yard’ is cement. Long story, different post).

I sank into a saggy folding chair, flicked a pair of over-sized sunglasses on to my nose from the crown of my head, and breathed in the 80 degree air.

Scout panted at my feet, Zoya lost herself in some make-believe world with neighbors, Elaina stretched out next to me; her nose in a book, and Polly giggled as a friend imprinted her body onto the ground with a sturdy piece of purple chalk.

Evangeline paced happily in front of me, hands flapping, sounds erupting in  my world that equate joy and excitement. “Oooohhhhhh, ahhhhhhhhh, yeeeeehaaaaaw.” To others probably just unpleasant noises they’d want to tone down. If she were a radio, someone  would get up and turn the dial. To me, though, it is her.

It is my daughter’s beautiful voice.

Last summer an afternoon like this was impossible without another adult present. Those truly were the dog days of summer in the world of Marchenko. Polly nursed an affinity for the street. Elaina and Zoya struggled with turn taking. Most of their games ended in tears. And Evangeline foraged the pavement for rocks and leaves and pieces of wood to eat.

“Evie, no!” my voice commands my daughter’s attention today. A chubby fist, still so baby after five years, already in motion to bring a small stick to her mouth to eat, pauses.

Her bent body straightens. She looks for me. Our eyes lock.

“No eat!”

I am all business.

She pauses, turns her chin towards her hand, and releases her grasp.

“Good job, sweetie! Way to go, Evie!”

If I ended this excerpt here, you would celebrate, right? This is a little girl that is non-verbal. So far she has no signs, she was abandoned at birth because of her diagnosis of Down syndrome, and it has taken an awful lot of work for both of us to bond.

Just wait until what comes next.

“I am so proud of you Evie! Come here,” I say. “Come here and give Mama a hug.”

I hold my arms out to Evie and will every cell in my face to attempt to communicate the hope in my heart.

The hope that my daughter will come to me when I ask her to. The hope that she will hear my voice and respond.

A slow smile unwinds across Evangeline’s face. Her feet rock back and forth and I stretch my arms through the tips of my fingers. If possible, my stretch would reach her and draw her to me where she belongs.

But then some of the magic, the hard work, the reckoning and redemption that have slowly taken place in the last three years since this child has joined our family would be lost.

This magic, here, now.

She takes a step towards me.

I gulp.

“Come here, sweetie. Good job, baby girl. Good job.”

Giggles erupt and she is in my arms, hugging me, proud of herself that she heard me, understood, responded, and sought comfort.

I’m proud too. I had no idea that bonding would be so much work for both of us. I assumed I would sign a piece of paper and she would fall into my arms where she belongs.

That scenario, however, has not been anywhere close to the adoption Polaroid that has cloudily developed in our lives.

But today on hot cement, my daughter has walked into my embrace. It took us both a long time to get here.

And I hope I am not so naive to think that this is it, from here on out everything will be sunshine and outstretched arms.

All relationships take work.

Evie and I are just starting to hear each other’s voice. We have a lot more to say to each other.

But our bond is there. It’s strengthening.

And it feels good.

STORY BLEED MAGAZINE

 

I have a post up today at STORY BLEED MAGAZINE.

Again, it is about the harder parts of our adoption story. Both STORY BLEED and WE ARE GRAFTED IN contacted me months ago about using my posts and now they happen to launch a day apart.

Funny for me too, because Evie and I are going to a new therapy appointment this morning. My mind is connecting the dots.

God is working a beautiful picture in us.

Would love for you to stop by STORY BLEED and WE ARE GRAFTED IN and check out some of the uglier parts of our adoption story.

They are just as important as the beautiful parts.

And if  you are an adoptive mom, I’d love to hear how your life is going with your little one.

A gift to my daughter’s other Mother for Mother’s Day

There are many things I like about Ukrainian culture.

One thing I absolutely loved while our family lived there for four years were my children’s birthdays.

In Ukraine, guests not only bring a gift for the child on her birthday, they also bring one for her mother. We’re talking flowers, chocolate, maybe a pair of earrings.

This is genius! Can I get an AMEN, moms?

It makes total sense. The mother is the one who made all the food for the party, and cleaned up the house, sent out the invitations, found a cute outfit for the birthday girl to wear, bought presents, wrapped presents, I could go on and on.

You are the one who stayed up all night with her in the bathroom with the shower running for croup. Motherhood is difficult. You care, you help, you pray, you breathe your child.

Evangeline’s birthday is not until October (and yes, I will accept presents for each of my children’s birthdays, email me for details).

A gift to Evangeline’s other mother

Sunday is Mother’s Day and on that note, I’d like to give a gift to Evie’s Natural  Mom.

So, here goes:

Your daughter is doing very well.

She’s healthy and strong. We talk all the time about finding a little gymnastics class for her. The girl has quads that could possibly take on a bodybuilder.

She’s beautiful. Her silky hair is growing down her back. It’s soft and smooth. Her eyes are like the sky. When she smiles at you, looking you in the eye, everything else around you fades away.

She’s happy. Evangeline loves to go outside. She loves to swing at the playground. And she has finally mastered the slide. She climbs and slides down all by herself, and it makes her so proud.

 

She’s included. Her three big sisters make sure that Evie is in on every game they play. They sing songs, build forts, take baths together (although the two older ones really are too big now). And in the last few months she has even started to enjoy playing with her big sister Polly, who is in her face all hours of the day. Her sisters love her so.

 

 

 


She’s going to school. Every morning Evie brings me her coat. She’s ready for the bus! She loves to go to school. A lot of times at drop off, she doesn’t want to get off the bus.

She also has a dog! We just got a dog a few weeks ago, and at first Evangeline wasn’t so sure about her. But now, they are starting to play together. Evie likes helping me take Scout for walks.

 

She’s valued. I must admit that at times our relationship has been difficult for both of us. But God has tethered my heart to this little girl. I am so thankful to be a part of her life.

So, I want to give a gift of thanks to you today. Thank you for sharing your baby with our family. I don’t know how it feels to be you, so I won’t pretend to. But I want you to know that I think about you. And I am thankful for you. And I hope this little update will bring a smile to your lips.

–Her other mother

(P.S. If you are a natural mother or an adoptee and find anything in this post offensive or just off, please email me at gillian@rcn.com. I am learning as I go as an adoptive mom, but desire to be respectful and thankful in my speech regarding adoption.)

I grieve sometimes, in the quiet places of my heart, the children they are not

Click here to read my guest post about the benefit of brokenness for a special needs parent at SNAPPIN’ MINISTRIES.

Are you an adoptive mom who is struggling?

If so, I have a message for you this morning.

It’s okay to struggle.

It’s okay that you struggled.

It’s okay that you are struggling.

It’s okay.

That’s it. That’s my message.

I’ve struggled. I still struggle.

Here are a few past posts to prove it:

A Few Thoughts, a post about my true feelings upon meeting my daughter

You’re doing it wrong, a post about second guessing myself as a mother

I’m scared of July 25th, a post about how I should have been doing so much better than I actually was

The Grinch’s heart grew two times that day, about cracks in my exterior towards my daughter

Hard Earned Love, more about how God has been molding us into a family

Post-adoption depression, finally figuring out, two years into our adoption story, that I was depressed

Our daughter Evangeline has been home with us for over two years. And for most of that time I’ve had so much guilt over struggling to bond with her. I couldn’t possibly let others know how I truly felt, because I was the one who wanted to adopt in the first place.

It can be a very lonely place when attachment isn’t going well, can’t it? We chose to adopt, God led us to it, so then, why are we struggling?

I was completed blind-sighted as to how difficult it was to bond with Evangeline. Before she came into our home, I tried to prepare myself for the difficulties she would face acclimating to our family. I did not, however, think about my own acclimation to becoming her mother. I was embarrassed. I thought I was the worst adoptive mom on the planet.

It helped me to talk to about it. A lot of moms seem to being doing OK in their roles as adoptive parents, but there are others who aren’t alright. I reached out to another mom struggling. We started to pray for each other and talk to one another on the phone. Since I’ve written about my struggles, I’ve heard from others, thanking me for being honest.

I know not everyone can blog about how they are feeling. I’m sure many people think I’m slightly off or a bit narcissistic for putting myself out there, but it’s so important to have SOMEONE to talk to. It helps me so much to know I am not alone in my struggles. I’d even recommend counseling if that’s an option. And of course, if you are a person of faith: pray. Ask God to help you. Ask him to mold your heart to your child’s life.

Mostly, don’t keep all your feelings inside. It will only make things worse. Hang in there. You are the right mom for your child. Each child is different, and even if it takes longer for you to truly connect with him/her, even if the love you have doesn’t feel quite like the love you have for your other children, it doesn’t mean you don’t love your kid.

Give yourself grace.

It’s okay.

(I’d like to start up an open dialogue about post-adoption struggles. A few blog posts ideas include: how I messed up bonding with Evangeline, when the adoption really isn’t going to work out, tips and resources on what could help with bonding. Please leave me a comment or a question or email me at gillian@rcn.com. Let’s talk about this. And I will also be writing about some of the things we’ve done that have helped with bonding. Stay tuned.)