When mom screws up … thoughts about jipping siblings of kids with Down syndrome

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What they lose … thoughts about siblings of kids with Down syndrome

“Mom, we just realized today that our school play is during the same week as family camp. We had to pull out of the play. We gave our lines to other actors,” my eleven-year-old daughter Zoya looked at me, alarmed, tears forming in the corner of her eyes.

About a month ago, we were offered an amazing scholarship to attend a special needs family camp in June. Our children Polly and Evangeline who have Down syndrome will have one on one aids for the week. There will be bonfires, and variety shows, a cabin designated just for us, and other families walking our road of special needs.

Sergei and I jumped at the chance. We signed up right away, knowing that we’d have to pull the four girls out of school for the week, and not paying attention at all to anything else that was on the schedule.

Oops.

Our older girls Elaina and Zoya have been working on their lines for the school play. Zoya especially was excited about the opportunity to participate.

When they came home today with doe eyes and alligator tears, my heart cracked a bit.

How many times has things like this happened?

More times than I care to admit.

Our family life is complicated because of Down syndrome.

Wait, that may not be entirely honest.

The honest truth is this:

I can’t keep up with everything that should be done for my four girls and so things like this happen. I over book, I forget to schedule play-dates  or to sign someone up for an extracurricular activity.

It seriously makes me feel like a schmuck.

What have my girls lost in life do to special needs, Down syndrome, and a mom who can’t seem to get her crap together?

A few years ago, I sat in a kid chair behind a small desk at a parent teacher conference. My eyes welled up as Elaina’s teacher talked about what a great leader she was in the class.

“She’s compassionate. She’s kind. She looks for the underdog and goes out of her way to help.”

At that moment I knew that I couldn’t take credit for these things. No, those qualities had to do more so with the presence of an extra chromosome that showed up in her sisters’ lives.

What do my girls lose?

Sure, they lose extracurricular activities, and time one on one with us sometimes, but I think they gain.

Elaina and Zoya are growing up accepting and aware of other people’s’ differences.

They are growing up realizing the world doesn’t revolve around them.

They are growing up with imperfect parents who have to apologize for screw ups, but also, they know they are loved to the moon and back.

I got down on Zoya’s level today and told her I was sorry. “You are allowed to hurt, honey, because it hurts, and it doesn’t seem fair. I will try to keep track of things better next time.”

That’s all I had to offer.

I can’t promise that things like this won’t happen again. But I can promise that she is seen and heard, and that she matters just as much as her sisters with Down syndrome to me, and to God.

That’s all I can offer.

And I will.

‘This belongs to’ … realizing who our special needs kids really belong to in a hospital cafeteria

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‘This belongs to’ … realizing who our special needs kids really belong to in a hospital cafeteria

I sit in the hospital cafeteria, a half eaten chicken sandwich and a bottle of water is positioned in front of me on the plastic tray that reminds me of grade school. My foot taps. A loud metronome sounds in my head. Tick, tick, tick, tick.

I scoop up another bite of chocolate pudding with whipped cream, an indulgence saved in my world for hospital cafeterias.

I look around for other parents. You can tell who they are, either by exhausted expressions, or by the white ‘this belongs to’ bag that carries their child’s things during surgery.

In the last seven years since I became a special needs mom, I’ve been in the hospital cafeteria countless times while waiting for one of my two daughters with Down syndrome.

Today Polly has two quick outpatient surgeries. Hopefully, it’s an in and out day; a tooth capped, a tooth pulled, and muck cleared out from the tear ducts in her eyes.

But there have been times when I’ve sat here for a reprieve during a much longer stay in the hospital; a brain surgery, or a scary test, or for recovery from a catastrophic stroke.

I put down my chocolate pudding spoon, and place my trembling hand on the cool white ‘this belongs to’ bag, the only thing left of my child; her scuffed up gym shoes, a pair of jeans, a plain pink shirt, and wait for a page that she is out of surgery, and that I can go to her, take her in my arms, and hold back her hair if she vomits from the anesthesia.

This isn’t the stuff parents dream of when we have children. No one thinks their child will be in need of life saving surgery. We all assume an extra chromosome or another special need will happen to someone else. But not to us.

But this is the stuff of life. Kids get sick. Kids are born with special needs. They fall off the monkey bars at school and break their arms. They wake up in the middle of the night with a tightening in the chest, or a stiff neck, or a fever of one hundred and four. They stop for pancakes with their mom and sister one bright Sunday morning, and have a stroke right there in the middle of the restaurant.

This belongs to …

And so we parents find ourselves sitting listlessly in hospital cafeterias, spooning chocolate pudding to our lips for comfort, gripping the white hospital bag of our child’s belongings, and wondering why in the hell God would allow such a thing to happen to them.

And to us.

I pat the ‘this belongs to’ bag like it is a loyal dog curled up next to me. After Polly gets out of surgery and recovers, God willing, I will take her things from the bag and put them back on her; her jeans, her pink shirt, her scuffed gym shoes. She’ll once again be mine, belonging to me, and we will toss the white bag in the trash and be on our way.

But the ‘this belongs to me’ bag will stay with me. It’s a reminder that my child isn’t actually mine, but God’s. Placed in my charge, at least for a little while, I am her white plastic bag that holds the precious treasure known as her life.

I will remember that there is someone who loves her too, loves her more, and has a good plan for her. And for me.

In the midst of crazy scary uncertainty in life, when kids get sick, when we parents find ourselves in waiting rooms or hospital cafeterias, I’ve come to learn that God is fine with our kicking and screaming, and fiery questions … “Why her? Why us?” We don’t have to be polite with God, or try to make it seem like our faith makes us strong and ready for these trials. No, we can be honest. We can be raw.

If we are able to get quiet enough to listen, and are patient enough to wait, he will answer.

And this is what he’ll say.

“This belongs to me.”

Mother’s Day Book Winners!

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Mother’s Day Book Winners!

Thanks to everyone who participated in last week’s Mother’s Day daily book giveaway! It was a huge success, and I hope you all have some great new books on your list to read!

A special thanks to the authors who took the time to visit with us here and who are giving away copies of their books:

Jennifer GrantShauna Niequist, Kate HopperClaire Bidwell Smith, Jena Morrow, and Suzanne Kamata.

Here are the winners to the Mother’s Day Book Giveaway!

Monday: MOMumental – bn100, Love You More -Tim

Tuesday: Bread & Wine – Deborah

Wednesday: Use Your Words – Julie Farrar

Thursday: The Rules of Inheritance – His Fire Fly

Friday: Hollow – Brianne

Saturday: Call Me Okaasan – TUC

Thanks again, everyone, for a great week. Stay tuned for more fun book giveaways coming your way in the next couple months!

 

Call Me Okaasan Book Giveaway and interview with Suzanne Kamata

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Help me welcome my friend Suzanne Kamata, and the excellent book she edited, “Call Me Okaasan, Adventures in Multicultural Mothering.”

I read this book of short stories and essays by 20 women writers from around the world about a year an a half ago, and the stories have stayed with me. You have to check this book out!

I invited Suzanne to talk to us about writing and motherhood. And to round out the week, Suzanne is offering one signed copy of her book to a lucky participant. Welcome Suzanne!

 

 

Call Me Okaasan Book Giveaway and interview with Suzanne Kamata

1. What is the hardest thing about being a writer and a mom?

Finding the time to write. Although I set aside one sacred day per week for writing, that day is often taken over by PTA meetings or school holidays or something else. I have all of these projects that I’m excited about and I become irritated when I can’t write, but sometimes the demands of motherhood subsume my writing time.

2. What leads you to write your books?

The book I’m writing now, which is a mother-daughter travel memoir, was prompted by my daughter’s desire to see the world. I figured I’d get a huge advance, like Elizabeth Gilbert, and we’d eat, pray, love in a variety of places, and then I’d write the book. So far it hasn’t worked out quite like that, though I was very fortunate to be awarded a grant by the Sustainable Arts Foundation for this project.

3. What has changed since you’ve been published?

It has allowed me to take my writing seriously. My family is, by and large, disinterested, and I live among people who can’t read English, so the motivation has to come from within.

4. What do you love right now about motherhood?

I love it that my daughter is now old enough to be a fun travel companion,and that my son is still a little bit willing to talk to me.

5. What do your kids think about your writing?

My daughter is my biggest fan, although she can’t read my writing. My son gives me high fives when I ask for them. I think they both think it’s pretty cool, although my son is a bit more reserved with his enthusiasm.

***

Suzanne Kamata lives in Japan with her husband and teen-aged twins. She’s the author of four books, including Gadget Girl: The Art of Being Invisible (GemmaMedia, May 17, 2013) and the editor of three anthologies. She also serves as Fiction Co-editor for Literary Mama. Connect with Suzanne at www.suzannekamata.com.

For a chance to win the giveaway (a signed copy of Call Me Okaasan):

1. Leave a comment ON THIS POST.

2. Tweet, share on Facebook, Pin, about Suzanne and/or my Mother’s Day daily book giveaway for ONE MORE CHANCE to win and leave another comment letting me know what you did (note, it’s just one more chance regardless of how much you share).

So that’s TWO CHANCES per person if you are so inclined!

Winners will be announced for each day (Monday, Tuesday, Wednesday, Thursday, Friday, Saturday) on Mother’s Day and chosen randomly from randomnumber.org.

Hollow Book Giveaway and Interview with Jena Morrow

Hollow An Unpolished Tale by Jena Morrow

Hollow Book Giveaway and Interview with Jena Morrow

Jena Morrow’s memoir Hollow, An Unpolished Tale is an honest narrative about one woman’s struggle with anorexia nervosa. I loved reading this book, and heartily recommend it and its sequel, Hope for the Hollow: A Thirty-Day Inside-Out Makeover for Women Recovering from Eating Disorders. Jena is giving away a signed copy of Hollow. Thanks, Jena, for visiting, and talking about writing and motherhood!

1. What is the hardest thing about being a writer and a mom?

Two words: Time management. My peak time for writing has always been evenings, and as a mom who also works full-time during the day, my evenings are usually devoted to family time – and by family time, I mean helping my eleven-year-old with homework that would challenge a rocket scientist (clearly, I am NOT “smarter than a fifth grader”), cleaning up random household mishaps (How DID that jelly get on the ceiling, anyway?), etc. – and if I save my writing for after my son goes to bed and the house is clean, I will never write. So, it is an ongoing, ever-evolving challenge to schedule times to write – and then to “hurry up and be creative!” But, one day I will have the house to myself and I’ll have ample writing time – and I will miss the chaos. So I choose to enjoy the now.

2. What led you to write your book?

My first book, Hollow, is a memoir of my teen years and it tells the story of my struggle to overcome anorexia in an inpatient treatment setting. I always knew I would write books, and I think I just kind of felt like that one had to come first. It’s a story that had to be told so God could propel me forward from there to write about other things. The response I often hear from readers is that my story helps to deglamorize eating disorders; it keeps it real and tells it like it is, which isn’t pretty. And that was important to me, because just before I began working on the manuscript for Hollow, a dear friend of mine lost her life to bulimia at the age of twenty-nine. In the process of grieving her death, I remember saying to a friend, “Someone needs to tell the truth about these awful illnesses. It isn’t a lifestyle choice; people die.” And my friend pretty much suggested that I might be the one to tell that truth, by sharing my own story in a very raw, candid way. And Hollow was the fruit of that challenge.

3. What has changed since you’ve been published?

I now have a platform from which to speak, and I’ve had the honor of sharing my story at conferences and in workshops at churches and schools, etc, as well as on national radio broadcasts, podcasts, television, etc. It’s truly been amazing the places God has taken me – and the things He has asked me to share. It has allowed me to meet so many incredible people, both fellow writers and professionals in the treatment field. It’s always interesting to me the way authors are perceived, especially when we go out and speak; people tend to think we have it all together. For me, it has been rewarding and enjoyable to be able to go out and say, “Look, I’m just like you guys; I’m a total ragamuffin in need of a big daily dose of grace.” It seems to have a disarming effect on people, and I’ve had total strangers pour their hearts out to me at signings and on call-in radio shows, etc – and it’s very cool to be part of that kind of vulnerable, human interaction. It is truly an honor.

4. What is your favorite thing right now about motherhood?

Oh, wow . . . Well, my son, Jaden, is getting ready to enter junior high school after this Summer, so right now is a very fun and uniquely challenging season in my motherhood adventure! I absolutely love watching Jaden develop into a young man with his own individual opinions and convictions and beliefs . . . It’s fascinating to me how his personality is exactly the same as it was at age two, but he’s coming into his own and, essentially, becoming more of himself as he grows older. He and I are able to have tickle fights in one moment and have a deep conversation about faith or philosophy the next moment . . . I love it. Really, I think every age he has been so far has been my favorite! Also, he just cracks me up. Our house may not have a lot of “normal” happening, but it sure is a fun place to be sometimes; never a dull moment!

5. What does your kid think about you being a writer?

For the most part, I think he thinks it’s pretty cool. But I did have to enter into an agreement with him that I would run things past him before writing about him in a blog or an article, etc . . . Which I suppose is fair!

***

94c696dd90300a7f023549.L._V192567111_Jena Morrow’s debut book, “Hollow”, chronicles her nearly three-decade-long battle with eating and body image issues. In her second book, “Hope for the Hollow”, Jena takes readers on a thirty-day devotional journey to challenge eating disordered thoughts and beliefs in light of God’s Word. In addition to being a writer, speaker, and activist for eating disorder awareness and prevention, Jena works as the Alumnae Coordinator at Timberline Knolls in Lemont, IL, a premiere residential treatment center for women and girls battling eating disorders, substance abuse, mood disorders, self-injury, and PTSD. Jena makes her home in a suburb of Chicago with her son, Jaden, his pet snake Stephanie, and a mischievous cat named Prim. Follow Jena on Twitter.

For a chance to win the giveaway (a signed copy of Hollow):

1. Leave a comment ON THIS POST.

2. Tweet, share on Facebook, Pin, about Jena and/or my Mother’s Day daily book giveaway for ONE MORE CHANCE to win and leave another comment letting me know what you did (note, it’s just one more chance regardless of how much you share).

So that’s TWO CHANCES per person if you are so inclined!

Winners will be announced for each day (Monday, Tuesday, Wednesday, Thursday, Friday, Saturday) on Mother’s Day and chosen randomly from randomnumber.org.

Please come back tomorrow to hear from Suzanne Kamata, editor of Call Me Okasaan.

The Rules of Inheritance Book Giveaway & an Interview with Claire Bidwell Smith

The Rules of Inheritance Book Giveaway & an Interview with Claire Bidwell Smith

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Every day this week, in honor of Mother’s Day coming up on May 12th, I am doing an interview with a writer/mother whom I admire.

Claire Bidwell Smith is the author of The Rules of Inheritance, a moving memoir about grief, family, and “how to overcome some of life’s devastating tragedies.” I devoured this book. The prose is breath-taking, and I identified, and learned from Claire’s grief journey. One lucky reader will win a signed copy of Claire’s book. Thank you, Claire, for taking the time to address motherhood and writing here on the blog!

 

1. What is the hardest thing about being a writer and a mom?

The hardest thing about being a writer and a mom is finding a balance in which I’m devoting enough time to both roles. Obviously being a mom takes priority, but I also feel that to be a good mom I have to be true to who I am, which is a writer, so it can get a bit muddled at times. I’m always wishing that I had more time to write, but I know that my role as a mother feeds me in emotional and creative ways that make me a better writer. I guess in a lot of ways, they go hand in hand, even if sometimes they seems to be working against each other.

2. What led you to write your book?

My book was really born out of a desire to give back in some way. I began writing it after I’d been working as a grief counselor in hospice for a number of years and I wanted to create something that would make people feel a little less alone in their grief process. I saw so many people struggling to make sense of Elisabeth Kubler Ross’s 5 Stages of Grief and so I thought that perhaps if I used my own story as an example of how fluid and interchangeable they are, it would make someone’s life a bit easier.

3. What has changed since you’ve been published?

I think the only thing that’s really changed since I’ve been published is how many people I connect with on a daily basis. I get messages from readers every day. They write to share their own stories and to tell me the ways in which my book shaped their own process. Every time I get one of these letters I feel like my intention for the book came true.

4. What is your favorite thing right now about motherhood?

My favorite thing about motherhood is how much more I laugh now. My daughters are constantly doing something that literally has me doubled over and I realize how serious my life had been before them. It’s such a gift.

5. What do your kids think about you being a writer?

My oldest daughter (age 4) talks all the time about how she wants to be a writer when she grows up, but I don’t think she really has any idea what I do. For all I know she could think that being a writer means traveling a lot, drinking a lot of wine, and having constant dinner parties. Which I guess is kind of true. But really, I hope that one day they’ll both think it’s pretty cool that I worked as hard as I have to create a book that I hope means something to a few people.

Headshot-5Claire Bidwell Smith lives in Los Angeles. She is a psychotherapist specializing in grief, and the author of the  memoir The Rules of Inheritance (Penguin 2012).

Claire received a BA in creative writing from The New School and a MA in clinical psychology from Antioch University. She has written for many publications including The Huffington Post, Salon.com, Slate, BlackBook Magazine and Chicago Public Radio. Her background includes travel and food writing, working for nonprofits like Dave Eggers’ literacy center 826LA, and most recently bereavement counseling for a hospice in Chicago. Find out more about Claire on her website www.ClaireBidwellSmith.com, Facebook, and Twitter.

For a chance to win a signed copy of The Rules of Inheritance:

1. Leave a comment ON THIS POST.

2. Tweet, share on Facebook, Pin, about Claire and/or my Mother’s Day daily book giveaway for ONE MORE CHANCE to win and leave another comment letting me know what you did (note, it’s just one more chance regardless of how much you share).

So that’s TWO CHANCES per person if you are so inclined!

Winners will be announced for each day (Monday, Tuesday, Wednesday, Thursday, Friday, Saturday) on Mother’s Day and chosen randomly from randomnumber.org.

Please come back tomorrow to hear from Jena Morrow, author of Hollow.

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Use Your Words, A Writing Guide for Mothers Book Giveaway & Interview with Kate Hopper

Use Your Words, A Writing Guide for Mothers Book Giveaway & Interview with Kate Hopper

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Kate Hopper, author of Use Your Words, A Writing Guide for Mothers, and the upcoming memoir Ready For Air, is giving away a signed copy of Use Your Words today on the blog. I own a copy of Use Your Words, and recommend it for any mom thinking of picking up the pen.

Kate has been a huge influence in my writing pursuits. Her desire to help mama writers is amazing, and she does it all while producing astonishing work herself. Talk about a great literary citizen, not to mention a cherished friend! I cannot WAIT for Kate’s memoir to come out!

1. What is the hardest thing about being a writer and a mom?

Both roles are hard in their own ways, but probably the hardest part of being a writer mom is finding the time to write. I try to reserve Monday mornings for writing when both girls are in school, but these mornings have recently been taken over with teaching/editing responsibilities. The rest of the week I’m at my day job or with my youngest, Zoë.  I try to be flexible and remind myself what I’ve learned over the last nine years trying to juggle writing and mothering and life: I need to be patient, and the writing will get done, just much slower than I initially think it will.

2. What leads you to write your books?

I’m drawn to the page again and again, but the reason I’m drawn there shifts with each project, and also as I grow and change. With Ready for Air, I felt a desperate need to both share the story of my daughter Stella’s premature birth, but also to write against the still-perpetuated myths of motherhood. That was what drove me to the computer every morning for several years.

Use Your Words grew out of my Motherhood & Words class, which I teach online and at the Loft Literary Center in Minneapolis.  I wanted to make that class available to a much wider audience of women interested in writing about motherhood, and that was what led me to my computer day after day as I was working on that book.

I’m now very slowly working on a novel (and I use “working on” loosely). I chose to move into fiction because after Ready for Air and Use Your Words I needed a break from myself on the page, and I wanted to explore and imagine lives beyond my own. I love the freedom to invent in fiction, to let my main character develop on the page as I’m writing. It’s such a different process than writing creative nonfiction; it feels like playing. My goal is to carve out more serious time for work on that project this summer.

3. What has changed since you’ve been published?

Well, writing is still hard work, no matter how many books you have out in the world. But having Use Your Words published and Ready for Air being released this fall has definitely helped to get my name out there, which has increased the amount of editing, teaching, and presenting I’m doing. The books give me a sense of legitimacy, which is silly, but true. I do think I’m taken more seriously now.

4. What is your favorite thing right now about motherhood?

I love the ages of my girls right now: 9.5 and 5. I take note daily of the ways they are developing into their own independent people. My goal for myself right now is to really celebrate and admire them every day (even on the hard days).

***

KHopper-UYW-Headshot1-200x300Kate Hopper is a writer, teacher, editor, and mother (and wife and daughter and sister and friend…the list goes on and on). Primarily, Kate writes about motherhood: the dark side, the humorous side, the places where these two intersect. She loves finding good writing that combats the myths of motherhood still perpetuated in our society and speaks honestly about what it’s really like to be a mother.

Kate has an MFA in creative writing from the University of Minnesota, where I taught literature and creative writing. She currently teach a variety of classes at The Loft Literary Centerin Minneapolis, including Motherhood & Words®, a class for women interested in writing about motherhood. Kate also teaches an online version of Motherhood & Words®. Visit her teaching page to learn more about her upcoming classes.

Kate’s writing has appeared in BrevityLiterary MamamamazineMinnesota Parent,MotherVersePreemie Magazinenytimes.com, and the Minneapolis StarTribune. Her first book, Use Your Words: A Writing Guide for Mothers, has just been published by Viva Editions. Her memoir, Ready for Air: A Journey Through Premature Motherhood, will be published by University of Minnesota Press (Fall 2013).

Connect with Kate at www.katehopper.com, at motherhoodandwords.com, on Facebook, and on Twitter.

How to enter the giveaway for Kate’s book:

1. Leave a comment ON THIS POST.

2. Tweet, share on Facebook, Pin about Kate and/or my Mother’s Day daily book giveaway for ONE MORE CHANCE to win and leave another comment letting me know what you did (note, it’s just one more chance regardless of how much you share :) .

So that’s TWO CHANCES per person if you are so inclined!

Winners will be announced for each day (Monday, Tuesday, Wednesday, Thursday, Friday, Saturday) on Mother’s Day and chosen randomly from randomnumber.org.

Please come back tomorrow to hear from Claire Bidwell Smith, author of The Rules of Inheritance, a moving memoir about grief, family, and “how to overcome some of life’s devastating tragedies.”

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Bread & Wine Book Giveaway, plus an interview with Shauna Niequist

Bread and Wine Book Giveaway, plus an interview with Shauna Niequist

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Shauna Niequist is the author of Cold TangerinesBittersweet, and the newly released Bread & Wine. She is also such a kind-hearted individual, I know you’ll just love getting to know her if you haven’t already read her books!

I loved Shauna’s other books, and Bread & Wine does not disappoint. I found myself spurred on by the intent of the book, and stopped in places by the prose. Shauna writes about the importance of community around the table, and in life (plus, there are tons of mouth-watering recipes for you to try at home). Thank you, Shauna, for taking a few moments to talk about motherhood and writing.

1. What is the hardest thing about being a writer and a mom?

Time, of course. It takes time to be a good parent, and time to be a good writer, and it’s tricky get the math right. Some weeks I do, and some weeks I don’t. Two ideas have been informing my choices lately: first, that a whole-hearted present mama is more important than a super-efficient-and-productive one, so I’m trying to slow everything down to allow myself to be more connected and rested.

Second, parenting and writing are my non-negotiables…but almost everything else is negotiable. Keeping a perfect house? Negotiable. Very, very negotiable. Going to every possible party and event? Negotiable. Having perfectly wrapped presents for other kids’ birthdays? Super-negotiable. Parenting, writing, being a good partner to Aaron: if those things are happening, almost everything else can slide.

2. What has changed since you’ve been published?

Almost nothing. In the words of my patron saint, Anne Lamott, if you weren’t okay before you got published, you won’t be okay after you are. It doesn’t change as much as you think. And especially in a season where people are doing such great writing on blogs and in self-published books, publishing doesn’t mean what it used to. This is good news for unpublished writers–you don’t need a pub board to give you an opportunity–you can make your own. And you should. :)

 ***

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Shauna Niequist is the author of Cold Tangerines,Bittersweet, and Bread & Wine.

Shauna grew up in Barrington, Illinois, and then studied English and French Literature at Westmont College in Santa Barbara.

She is married to Aaron, who is a pianist and songwriter. Aaron is a worship leader at Willow Creek and is recording a project called A New Liturgy. Aaron & Shauna live outside Chicago with their sons, Henry and Mac.

Shauna writes about the beautiful and broken moments of everyday life–friendship, family, faith, food, marriage, love, babies, books, celebration, heartache, and all the other things that shape us, delight us, and reveal to us the heart of God. Connect with Shauna at shaunaniequist.com and on Facebook and Twitter.

For a chance to win a signed copy of Bread & Wine:

1. Leave a comment ON THIS POST.

2. Tweet, share on Facebook, Pin about Shauna and/or my Mother’s Day daily book giveaway for ONE MORE CHANCE to win and leave another comment letting me know what you did (note, it’s just one more chance regardless of how much you share :) .

So that’s TWO CHANCES per person if you are so inclined!

Winners will be announced for each day (Monday, Tuesday, Wednesday, Thursday, Friday, Saturday) on Mother’s Day and chosen randomly from randomnumber.org.

Please come back tomorrow to hear from Kate Hopper, author of Use Your Words, and the upcoming memoir Ready For Air.

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Love You More, and MOMumental book giveaway, plus an interview with author Jennifer Grant

Love You More, and MOMumental book giveaway, plus an interview with author Jennifer Grant

Here it is! The kick-off of my long Mother’s Day book giveaway and author interview week here at www.gillianmarchenko.com. Thanks for stopping by, spread the social media love, and don’t forget to leave a comment each day for a chance to win signed copies of the books.

And now … on to Jennifer :) .

Love You More

Jennifer Grant, author of Love You More: The Divine Surprise of Adopting My Daughter, a memoir about adoption and MOMumental: Adventures in the Messy Art of Raising a Family, an honest, fun, and introspective look at motherhood, joins me today to talk about motherhood and writing.

I have to tell you, reading Love You More validated a lot of deep parts in me as an adoptive mom.

Read Jennifer’s interview below, and be sure to leave a comment for a chance to win a signed copy of one of her books! Thanks Jennifer!

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1. What is the hardest thing about being a writer and a mom?

When my kids were much younger (they are now 17, 15, 13, and 11), I probably would have said that the hardest thing about being a mom who writes – or a writer with kids – was finding blocks of time to be quiet, think deeply, and work. I remember feeling guilty when I was at home interacting with the kids, but distracted by my work. I hated the feeling that I was not listening
well to them or that I was rushing through my life. I felt pulled in more than one direction much much more than I do now.

Now that they are older, the issue I struggle with most as a mom who writes/writer with kids is keeping myself from writing about things that would truly embarrass my kids or make them feel silenced or ashamed.

After I finished writing MOMumental, I asked my kids permission to share certain stories. After reading it aloud to them, I did take out some anecdotes that made them feel embarrassed. (But they were so good!)

As they navigate the tricky bits of growing up and moving through adolescence, I’ve had to refrain from writing about many, many issues that have come up at home. Truth is, I figure out how I feel about something by writing about it. I wish I could write in great detail about what it’s like to parent adolescents but…I don’t want to compromise my children’s trust in me. Were I to write about some of the things we talk about, I would certainly do so. Somehow Anne Lamott and her son worked this out when she wrote about teenaged Sam. Maybe the reason I haven’t is that I’m outnumbered!

2. What led you to write your books? 

My first book, Love You More, grew out of a series of newspaper columns I wrote in the first few years after adopting my youngest child, Mia, from Guatemala. Parents who have welcomed children by adoption are hungry to read about the experiences of other adoptive families and I’d often receive mail from people whose family or friends had clipped my columns and sent them across the country. When they wrote me, these readers would say, “When are you going to write a book!?!” It was a privilege to write Love You More and I consider it my gift to my daughter primarily, but also to other parents who have chosen to adopt a child.

I wrote MOMumental the next year. It’s a sort of sequel to LYM as it is about parenting my four kids, but it’s not specifically about raising a child whom you’ve adopted. It’s about connecting in an authentic way with our kids which I think is the most important thing we can do. Readers have said they enjoy it because it’s funny (and I tell wince-worthy stories of my own parenting fails), but also because I make very clear that there is not one good or perfect way to raise kids. We all seem to seek that elusive “best way to be a mom” guidebook, but truly, we are all different, have our own combinations of strengths and weaknesses. There are many many ways to be a good mom.

MOMumental is about our unique family’s culture, but encourages parents to relax a bit, find ways to connect with and to enjoy their kids.

3. What has changed since you’ve been published?

Many things have changed since those first two books were published. My kids are in different stages than they were when I wrote them. As I noted before, we are now deep into the world of teenagers – driving, college searches, romantic relationships, and so on.

Also, because I wrote two books about family life, I’ve found myself asked to speak – primarily at MOPS or other parenting meetings. That’s a new vocation for me.

I’m now at work on two new projects that will be released next year.

4. What is your favorite thing right now about motherhood?

As much as I know I’ll miss him, preparing my oldest, Theo, for college has been a rich time for me. He’s a junior in high school and I feel like I see the adult he will someday become. I took him on some college visits over the past several months and that one-on-one time was so much fun. He’s great company and I see such maturity and grace in him. I enjoy my kids as tweens and teens – they are all so surprising, complicated and interesting to me.

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A writer and mother of four, Grant has particular interests in “good enough” parenting, the whims of popular culture, and exceptional Vietnamese food. She has written a column and many health and parenting feature stories for the Chicago Tribune and is a regular contributor to FullfillSojourners‘ God’s Politics blog, and Christianity Today’s her.meneutics blog for women.Grant is a promiscuous reader who (usually) finishes what she starts, but is just as likely to be found reading Dinosaur Bob as Kate Chopin. She serves as a judge for the Christy awards. In 2012, she was a presenter (on the “tricky bits” of writing memoir) at Calvin College’s Festival of Faith and Writing.Grant contributed to Always There: Reflections on God’s Presence for Moms (Revell, 2012) and Everyday Matters Bible for Women (Hendrickson, 2012).

Her work has also been published on britannica.comadoption.commomitforward.comeatdinner.org, and in magazines including Chicago Parent,Christianity TodayDraftMomSense, and Conscious Choice. For more than a decade, she wrote features, restaurant profiles, and general interest and family life columns for Sun-Times Media newspapers. Grant was a founding member of Redbud Writers Guild and is a member of the National Society of Newspaper Columnists (NSNC).

Grant is currently at work on Disquiet Time with her friend and collaborator Cathleen Falsani and on 12: A Daybook which will be published by Loyola Press in 2014 or early 2015.

Released in May 2012 from Worthy Publishing, her second book, MOMumental: Adventures in the Messy Art of Raising a Family, was featured in Publishers Weekly and The Christian Science Monitor.Jennifer’s memoir, Love You More: The Divine Surprise of Adopting My Daughter was published in August 2011 by Thomas Nelson publishers. Jennifer is a graduate of Wheaton College (IL) and received her Masters degree in English literature with concentrations in fiction writing and critical theory (Go Derrida!) from Southern Methodist University. She lives with her husband, four children, and a wise and affectionate mutt named Shiloh outside of Chicago, Illinois.Find her on Facebook, on Amazon, on Twitter @jennifercgrant@momumentalbook, and @loveyoumorebook, and elsewhere online atwww.jennifergrant.com and grantjennifer on Linked in.

For a chance to win a signed copy of Love You More or MOMumental:

1. Leave a comment ON THIS POST.

2. Tweet, share on Facebook, Pin about Jennifer and/or my Mother’s Day daily book giveaway for ONE MORE CHANCE to win and leave another comment letting me know what you did (note, it’s just one more chance regardless of how much you share :) .

So that’s TWO CHANCES per person if you are so inclined!

Winners will be announced for each day (Monday, Tuesday, Wednesday, Thursday, Friday, Saturday) on Mother’s Day and chosen randomly from randomnumber.org.

Please come back tomorrow to hear from Shauna Niequist, author of Cold TangerinesBittersweet, and the newly released Bread & Wine.

“Parenting and writing are my non-negotiables…but almost everything else is negotiable.”

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Why a wave matters, thoughts on parenting a nonverbal child

nonverbal

Why a wave matters, thoughts on parenting a nonverbal child

“I had a dream last night that Evangeline started talking,” Sergei tells me as we tag team through our early morning duties to get our four children off to school.

I smile at the thought … we both seem to dream about Evie speaking to us at different times … and busy myself making peanut butter sandwiches for the girls’ lunches.

About our girl

Evangeline is six. We adopted her from Ukraine when she was two and a half years old. She has Down syndrome like her older sister Polly.

And so far, she is nonverbal.

For a while after Evangeline came home, I thought it would just take time and therapy for her to start speaking. I assumed that nonverbal meant  Evangeline would not be able to communicate with us until she could use words.

It has been a struggle. Evie doesn’t initiate closeness. She tends to stay to herself. She watches the world with her cool blue eyes and I wonder, “oh baby girl, what are you thinking?”

I ache to know.

I dream of her whispering the desires of her heart in my ear.

But that is not happening today.

So I work at learning the language she does speak.

When Polly hugs her too hard and Evie cries, I teach Polly. “That’s Evie’s ‘no.’ She doesn’t like you hugging so hard. Be gentle.” When Evie takes my hand and leads me to the bathroom, I know she wants to take a bath. When she brings us her pecs (pictures exchange communication system) picture of a pudding, I happily give her a snack.

I don’t take these things for granted. They are huge milestones for our girl, and I am thankful her world is opening up a bit more. I am thankful she is starting to understand that she has a voice. I’m thankful she is starting to believe she can trust us with it.

But my mother’s heart craves more. I want to hear Evangeline’s actual, audible voice making words. I want to talk to her. I get angry on her behalf, because she should have more in life, and I get sad … because, honestly, it is hard work for both of us to try to speak the same nonverbal language.

The school bus is almost here.

I zip up Evie’s fuschia spring coat with yellow and light pink swirls on it, smooth her corn silk hair from her forehead, and look my heart-shaped faced daughter in the eye. She allows me a gaze, a prize for the day as eye contact is hit and miss.

“We love you sweet girl. Have a great day at school.” The yellow school bus pulls up to the house, I clap my hands twice, signing ‘school,’ and watch my husband gently lift our girl up into his arms to take her outside.

I sigh, look around, realize there’s still much to be done to get the other girls ready for their day, and call to Polly to get dressed.

“Hey, guess what?” Sergei says to me as he comes back inside, closing the front door behind him.

“Before Evie got on the bus, she turned around and waved at me.”

My husband’s words stop me. Tears well up in my eyes.

“Like a real, intentional wave?”

“Yes, a real, intentional wave.”

“As in, ‘bye?”

“Yes, as in ‘bye.”

We look at one another for a second as our other children buzz around us.

Sergei smiles.

I smile.

Who knew that an intentional wave could make a mother cry?

I’ll tell you who. A mother to a child who is nonverbal.

Our daughter Evangeline waved ‘bye bye’ to her father before getting on the bus.

That matters …

It matters so much.

And I realize. She is speaking … we just have to slow down enough to hear her.