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gillian marchenko

Author and Speaker

Archive for October, 2013

21 facts about Down syndrome

  Today is the last day of October, which is Down syndrome awareness month. Take a moment to read this list of facts. Be educated. Be aware! 21 facts about Down syndrome 1. Down syndrome is a genetic condition. There are *three* types of Down syndrome: trisomy 21 (nondisjunction) accounts for 95% of cases (what my daughters have), translocation accounts for about 4% and mosaicism accounts for about 1%. 2. People with Trisomy 21 have 47 Chromosomes instead of 46 in each cell. This is…

Daily Bread: parenting kids with special needs

Sun Shine Down Polly hug

Daily Bread: parenting kids with special needs “How do you deal with the possibility that you could be a ‘forever mom,’ that is, that Polly and Evangeline may never leave home?” a young mom asks me after I finish sharing our family’s story with her MOPS group. I get this question often. It makes sense. I have children with special needs. We are unsure of the future. Will they live on their own or at home? What will it be like to care for adults…

For parents who aren’t ready to celebrate Down syndrome

For parents who aren’t ready to celebrate Down syndrome (This is a recycled blog post that I share every year in October for Down syndrome Awareness Month because the ethos of it rings true and in my opinion, is essential to bring to light. If you are a new parent or a seasoned parent to a child with Down syndrome, wherever you are in the journey today, I’m here to tell you it is OK.) I read a blog yesterday from a mother of a…

‘This belongs to’ … realizing who our special needs kids really belong to in a hospital cafeteria

this belongs to

(I’m re-sharing this post in honor of Down syndrome Awareness Month).  ‘This belongs to’ … realizing who our special needs kids really belong to in a hospital cafeteria I sit in the hospital cafeteria, a half eaten chicken sandwich and a bottle of water is positioned in front of me on the plastic tray that reminds me of grade school. My foot taps. A loud metronome sounds in my head. Tick, tick, tick, tick. I scoop up another bite of chocolate pudding with whipped cream,…

Polly likes signing books!

Sun Shine Down watervliet 9

Polly likes signing books! Here are some pictures of our first book signing of Sun Shine Down in Watervliet, Michigan, hosted by my sister Amy, and my parents Anne and Karl. It was a wonderful day!