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gillian marchenko

Author and Speaker

Archive for March, 2013

Thoughts on being two people at once, a mom and a writer

© Aeolos | Dreamstime Stock Photos & Stock Free Images

Thoughts on being two people at once, a mom and a writer (I’m on vacation … So enjoy this recycled post today!) OK, so I am a mom. Obviously. I usually have stains on my shirt. I sweat a lot from picking kids up and down all day, and if I am talking to you in a public place with my children in tow, I am typically looking out of the corner of my eye to ensure that they don’t run away. I’ve been a…

Leading the way, thoughts about sisterhood and Down syndrome

lead the way

(I’m on vacation this week … So here’s a post from the archives. Enjoy!) Leading the way, thoughts about sisterhood and Down syndrome When Polly was born and we learned of her diagnosis of Down syndrome, I grieved the child I expected. I didn’t know much about Down syndrome. My mind quickly flipped to un-flattering images of a child sitting alone at recess, or a mother in her golden years walking slowly through the aisles of Wal-Mart so that her adult daughter, still a child, could…

World Down Syndrome Day 2013, RAISE YOUR FLAG

AUTHOR

World Down Syndrome Day 2013, RAISE YOUR FLAG Today is World Down Syndrome Day 2013 … And I have no idea what to write, let alone the message I want communicated in the words I type. Why is this? I’ve been advocating for my daughters with Down syndrome for seven years. Even in the beginning, after my daughter Polly was born, as I grieved the child I expected (mostly out of ignorance), I still picked up whatever flag I could and waved it vigorously for…

In My Arms, the privilege of holding my daughter with Down syndrome

© Amdezigns | Dreamstime Stock Photos & Stock Free Images

In My Arms “Mom!” Polly yells out in her sleep. Her body thrashes to and fro on our Queen sized bed. Her legs kick the covers off. Sweat glistens her forehead. Her father and two older sisters went out for the night. Her little sister, having been all tuckered out from school and therapy had been asleep for an hour. I bedded Polly in next to me, thinking that my husband would move her when he gets home, and that her slight of breath, up and…

Gifts from a child with Down syndrome

© Qtrix | Dreamstime Stock Photos & Stock Free Images

    (Join me in welcoming Chris Newlon as our guest blogger today. Thank you Chris for your beautiful post!)       Gifts from a child with Down syndrome In the first few years of life, our daughter Rebecca had two major operations, a delay-in-proper diagnosed bowel issue, and pneumonia three times. This can set anyone’s development back but was especially difficult for her as she was born with Down syndrome. As Rebecca struggled through those years and slowly grew stronger, her increased mobility allowed her…